Updated on: 2 October 2023

Roles in: Z_INACTIVE_Neuromuscular Group

1. In the past 36 months have you accepted the following from a commercial organisation with a financial interest in the broad topic area of the Group/Unit?

a) Support for attending meetings, including sabbaticals and study tours (this covers travel, accommodation and/or hospitality)?
No

b) Payment or honoraria for lectures, presentations, speaker bureaus, manuscript writing, or educational events?
Yes - Sanofi Genzyme, Santhera, Roche, PTC bio

c) Fees for organising education?
No

d) Grants and contracts?
Yes - PI for Pharma sponsored clinical trials: Santhera, Reneo pharma, Dynacure

e) Funds for a member of staff?
Yes - PhD student, Muscular Dystrophy UK

f) Fees for consulting?
Yes - PTC bio, Santhera, Reneo, Sarepta, Reneo pharma

g) Royalty or licences payments?
No

h) Payment for expert testimony?
No

i) Payment for a fellowship?
No

j) Payment for participation on a Data Safety Monitoring Board, Advisory Board, or Guideline Panel?
Yes - Roche, for independent data and safety monitoring board for clinical trials Astellas for independent data monitoring committee Independent safety and monitoring board for TriNDs (CRO for CINRG network- International)

k) Payment for a leadership or other fiduciary role in other board, society, committee, or advocacy group?
No

2. In the past 36 months have you, your spouse/partner or an immediate family member been employed by or do you or they own a commercial organization with a financial interest in the broad topic area of the Group/Unit?
No

3. Do you own stocks or shares in a commercial organization with a financial interest in the broad topic area of the Group/Unit?
No

4. Do you hold any patents (planned, issued or pending) for products relevant to the broad topic area of the Group/Unit?
No

5. Do you have any other competing interests (financial or non-financial)?
No